Famliy holds benifit for rare genetic disease

By KBJR News 1

Famliy holds benifit for rare genetic disease

January 11, 2014 Updated Jan 11, 2014 at 8:23 PM CDT

Superior, Wi (NNCNOW.com) -- Earlier this week we put you in touch with a family who has a rare genetic blood vessel disorder.
On Saturday they held a benefit to bring awareness to the disease.

Jeremy Kennedy, along with his two children have a rare genetic disorder that causes abnormal blood vessel formation.

Jeremy's wife Crystal put on a benefit to help pay for expensive medical bills and trips to the Mayo Clinic.

Crystal says Saturday was a chance to have fun with friends and family.

"We are not sleeping in a hospital we're not staying in a hotel, we are just here spending time together and all of our family and friends are here, It's just what we needed after all this stress," said Crystal Kennedy, organizer of the event.

The benefit was at the Log Cabin Tavern, and featured a silent auction with items donated from area business.

Posted to the web by Kati Anderson.