Superior Comes Together For Girl With Rare Disease

By KBJR News 1

March 30, 2014 Updated Mar 30, 2014 at 10:46 PM CDT

Superior, WI (NNCNOW.com)

"Want to go ten dollars on that? She's going ten dollars on this Tony Hawke poster." barked an auctioneer.

A good auction is a lot of fun. Some would say a bad auction is fun, too.
This auction in Superior on Sunday was for a good cause, helping a little girl fight a bad disease.
Amelia Joy Baker fell ill near her second birthday a few months ago.

"She woke up one day and just couldn't walk anymore." said Lee Baker, the girl's mom.

The diagnosis was Opsoclonus Myoclonus Syndrome, or OMS.
The little girl's symptoms grew worse.

"She had these rages where she would just flail uncontrollably, scream and she would bite us and pinch us and scratch and then she started biting herself." said Baker.

Further medical detective work revealed a cancerous brain tumor that probably triggered the OMS.
The syndrome is incurable but treatable.

"The hope is that a child goes through a year of receiving intense treatment which we're in the middle of now." said Baker.

After the treatment, the syndrome goes into remission nearly 90% of the time.
This fundraiser at Billings Park Civic Center will help pay the Baker's travel expenses to see Amelia Joy's specialists.
Hundreds of people turned out to help, including several Superior firefighters who try to attend as many benefits as they can.

"It's a chance to give back to the community everything, it's what we do. Overgrown boy scouts, we try to get out and give everyone a hand any chance we can get." said Lane Halvorson of Superior Fire Department.

The Bakers are glad the hand was offered to them and urge other parents facing a similar situation do the same when the hand comes to them.

"You don't know how vulnerable you are so accept help when it comes along and let people help you." said Baker.

"Going once, going twice, it's right over here. She'll take the Tony Hawke poster for 10 dollars." said the auctioneer.

In Superior, Dave Anderson, KBJR 6 and Range 11.

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