Poplar, WI - (Northland's NewsCenter) - It's an incurable disease found in one in ten million people in the United States.
One brave young boy from Northwestern Wisconsin was recently diagnosed with disorder.
Now a community is coming together to help him.
Thaddeus Guderian is just like any other 2 1/2 year old boy, playful, energetic and full of life.
"He's just a normal little kid. He likes to get in trouble, he likes to get dirty, he does whatever he wants to do," says Thaddeus father, Troy Guderian.
You would never know he was diagnosed with an incurable autoimmune disorder.
"You would never know anything was wrong. He was developing at a normal rate he was walking; he was babbling...everything was normal." Guderian said.
But, without warning... in 2010, little Thaddeus began stumbling, shaking and not being able to speak.
"We doctored at Gillette Children's Hospital, Mayo Clinic. Nobody could figure out what was wrong and why when he got sick he pretty much lost all of his abilities to walk and feed himself would drool," says Thaddeus's mother, Andrea Guderian.
After a year and a half of test after test, doctors diagnosed Thaddeus with viral Opsoclonus Myoclonus Syndrome.
"Right now his immune system is attacking his brain," Guderian says.
But, the contents of one little jar of ACTH could be the difference for the brave two-and-a-half year old.
"This is our last resort, this medicine is the one that is supposed to, this is the one we have all our hope in," Guderian says.
But the treatment doesn't come cheap.
"For the first three weeks he gets two shots a day for the first week, one shot a day for the following two weeks...and in that first three weeks it costs 27-thousand dollars," Guderian said.
Thaddeus will need at least one year of that treatment, but it doesn't come without some risks.
"He has to take an antibiotic three days a week and he's also on zantac twice a day twice a day because ACTC also causes acids and ulcers," Guderian says.
Thaddeus just started taking the new medication on Thursday, so it's too soon to tell if there is any improvements.
Troy and Andrea are hopeful their beautiful boy will be running and talking by the summer.
A benefit has been set up for Thaddeus in order to help offset the family's medical costs.
A spaghetti dinner, carnival and silent auction will be held on Sunday, March 4Th from noon to five p.m. at Northwestern High School in Maple, Wisconsin.
Tickets may be purchased at Northwestern Elementary School...or at any of the Superior Savings Bank branches, or at the door the day of the event.
An account has been set up in Thaddeus' name for donations at Superior Savings Bank.
Written for the web by Danyel Piecek.